Mel and Charlie Dixon, parents of two children with an incurable genetic disorder, raised £70,000 through a nine-hour charity walk in London. Their children, Tom and Rosie, carry a rare mutation of the DHDDS gene, affecting only a handful of cases worldwide. The neurodegenerative condition has led to developmental delays and difficulties in coordination. The couple has organized numerous fundraising events through their charity, Cure DHDDS, emphasizing the critical need for donations to fund research that may lead to potential therapies or treatments for the disorder affecting their children.
The couple's efforts culminated in a nine-hour charity walk, uniting 130 participants to raise $70,000 for critical research into a rare genetic disorder affecting their children.
Through their charity, Cure DHDDS, the couple is focusing on organizing various fundraising events, emphasizing the importance of research funding in finding potential treatments for their children's condition.
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