"My daughter was (hurting herself) in such a way that I felt like she was going to die from the strong blows that she gave herself. I felt like one of those was going to kill her. And I was already on the verge of collapse. I couldn't see my daughter like that anymore."
"I've seen her initially every month, and if the patient doesn't have an issue, we have separated (appointments every) two months, three months,"
"We have seen them multiple times without worrying about what the patient needs to pay for. Then there's the outside support they get, like member care services, enrolling in insurance, making sur"
Kathia and her daughter emigrated from Peru three years ago seeking medical care for the daughter's rare neurological disorder, Landau-Kleffner Syndrome. Multiple South Bay clinics presented bureaucracy, limited options, and staff unfamiliar with the condition. Initial treatments often felt impersonal and ended with medications that caused severe side effects and failed to control seizures and hyperactivity. Kathia feared for her daughter's safety as self-injury escalated. Two years ago, Bay Area Community Health in East San Jose connected with the family; clinical director Dr. Swetang Shah tailored appointment length and frequency and helped secure ongoing visits and support services, including insurance enrollment.
#landau-kleffner-syndrome #community-health-clinic #immigrant-healthcare #pediatric-neurology #nonprofit-medicine
Read at The Mercury News
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