"When Chantal Chaervey's son with cerebral palsy lost access to healthcare services at 18, she did not imagine she would be fighting four years on to change this. As a child, Harry Chaervey, 22, from Brandeston, Suffolk, was diagnosed with epilepsy and cerebral palsy, a condition that affects movement and co-ordination. Throughout his time at a specialist school, Harry, who is non-verbal, enjoyed access to hydrotherapy a form of physiotherapy involving exercise in a warm pool that helps with movement."
"Ms Chaervey said without the hydrotherapy, Harry had "completely lost the use of his legs", meaning when he wants to move, he either has to shuffle on his knees or he has to use a wheelchair. She said he was in "constant" pain, his epilepsy had worsened, he was at risk of sudden unexpected death in epilepsy, and he struggled to chew food, sometimes leading to choking. Ms Chaervey said Harry was also suffering from depression."
Harry Chaervey, 22, from Brandeston, Suffolk, is non-verbal and lives with epilepsy and cerebral palsy after failed infant liver transplants that caused organ failure and brain damage. He received hydrotherapy at a specialist school, which supported his movement. After leaving school at 18, NHS-funded hydrotherapy access ceased and his mother struggled to secure Continuing Healthcare funding. Without hydrotherapy he has largely lost use of his legs, now shuffles on his knees or uses a wheelchair, endures constant pain, has worsened epilepsy with increased SUDEP risk, struggles to chew and sometimes chokes, and experiences depression. His mother has campaigned for four years.
Read at www.bbc.com
Unable to calculate read time
Collection
[
|
...
]