Since the Lancet Commission introduced the term 'profound autism' in 2021, it has generated substantial interest among various stakeholders. A Delphi process was utilized to create a consensus definition focused on individuals requiring constant adult care, often with significant intellectual disabilities. This term aims to catalyze research and intervention strategies addressing the needs of this marginalized group. The rise of 'profound autism' reflects a shift towards recognizing autism subtypes, promoting tailored approaches rather than a generalized diagnosis for the spectrum's diverse population.
The term 'profound autism' applies to those who require 24hr care, are unable to be left alone, and typically have significant cognitive impairments.
A Delphi process determining a consensus definition is expected to focus future research and intervention specifically on the most affected individuals with autism.
'Profound autism' reflects a growing trend toward recognizing subtypes within autism, acknowledging varying needs rather than viewing it as a one-size-fits-all diagnosis.
Since 2021, nearly five hundred articles on 'profound autism' signal a commitment to understanding and addressing the needs of those long neglected in research.
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