Haly, who is 40, says, 'People with spinal muscular atrophy like myself, living to my age already is a huge win.' Despite her illness, she achieved remarkable success.
Haly describes her situation: 'It's like my foundation's falling apart.' She fears losing SSI would mean losing her career and being unable to afford necessary care.
Despite being a software engineer at JPMorgan Chase, Haly states, 'Even with a high-paying job, I can't pay for 24-hour aides and other high-cost medical care on my own.'
An NPR investigation reveals that SSI often fails people with disabilities due to outdated and complex rules, jeopardizing their independence and financial stability.
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