By the time Rena Barrow-Wells gave birth to her fourth baby in 2020, she was well-versed in caring for a child with cystic fibrosis. She was also experienced in fighting for a diagnosis of the disease, which runs in families and can severely damage the lungs and digestive system.
Children who are diagnosed after they are 2 months old are also at greater risk of serious lung problems and death. People from minority communities have struggled to receive lifesaving care for cystic fibrosis for decades.
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