#pediatric-palliative-care

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Healthcare
fromLos Angeles Times
1 day ago

Commentary: Fraud is rampant, but good hospice care exists. Here's a guide to making the right choice

Hospice fraud is rampant due to financial exploitation of Medicare, with California highlighted as a significant problem area.
Medicine
fromBuzzFeed
11 hours ago

I'm A Death Doula. Here's What I've Learned About The End Of Life.

Being a death doula provides profound insights into life and mortality, inspiring a deeper appreciation for each moment.
#assisted-dying
UK politics
fromwww.independent.co.uk
1 day ago

Assisted dying bill fails to become law after running out of time in House of Lords

The Terminally Ill Adults (End of Life) Bill failed to progress in the House of Lords due to procedural issues, not its merits.
UK politics
fromwww.independent.co.uk
2 days ago

Here's how the assisted dying Bill could still become law

The Terminally Ill Adults (End of Life) Bill is expected to fail in Parliament, highlighting the ongoing debate over assisted dying in the UK.
UK politics
fromwww.bbc.com
2 days ago

Assisted dying bill to run out of time as Lords hold final debate

A proposed law to legalise assisted dying in England and Wales is set to expire after failing to progress in the House of Lords.
UK politics
fromwww.theguardian.com
1 day ago

Assisted dying bill will not become law after it falls in the House of Lords

Assisted dying legislation failed in England and Wales due to procedural issues, not on its merits, after running out of time in parliament.
UK politics
fromwww.independent.co.uk
1 day ago

Assisted dying bill fails to become law after running out of time in House of Lords

The Terminally Ill Adults (End of Life) Bill failed to progress in the House of Lords due to procedural issues, not its merits.
UK politics
fromwww.independent.co.uk
2 days ago

Here's how the assisted dying Bill could still become law

The Terminally Ill Adults (End of Life) Bill is expected to fail in Parliament, highlighting the ongoing debate over assisted dying in the UK.
UK politics
fromwww.bbc.com
2 days ago

Assisted dying bill to run out of time as Lords hold final debate

A proposed law to legalise assisted dying in England and Wales is set to expire after failing to progress in the House of Lords.
Mental health
fromFast Company
2 days ago

LLMs don't get mental health right. We need a two-pronged approach to fix them

LLM-powered chatbots can inadvertently enable suicide and self-harm ideation, necessitating a clinically informed approach to user interactions.
Public health
fromwww.bbc.com
3 days ago

'I gave up my job due to the stress of my child's food allergies'

A mother left her job to care for her daughter with life-threatening food allergies due to ongoing stress and fear from severe allergic reactions.
NYC parents
fromwww.bbc.com
3 days ago

'My baby scratches and scratches': Families say their homes are making their children sick

Over 135,000 families in England live in temporary housing, facing overcrowding and poor living conditions.
Artificial intelligence
fromFuturism
3 days ago

AI Chatbots Telling Cancer Patients to Try Useless Woo-Woo Treatments Instead of Chemotherapy

AI chatbots may recommend unproven cancer treatments, posing risks to patients seeking health advice.
fromwww.bbc.com
1 week ago

'It's an honour to give bikes to kids with cancer'

"The bikes we give are brand new, because part of it is the delight of getting a new bike. These kids have been in treatment for so long and can miss out on big stages of development."
Cancer
#mental-health
Medicine
fromPsychology Today
1 day ago

The Health of American Surgeons, We Are Not Okay

The Pitt accurately portrays the mental health struggles faced by medical professionals, highlighting the alarming rates of physician suicide.
Medicine
fromPsychology Today
5 days ago

How to Create a Psychiatric Advance Directive

A psychiatric advance directive is a legal document outlining mental health treatment preferences during a crisis when communication is impaired.
Medicine
fromPsychology Today
1 day ago

The Health of American Surgeons, We Are Not Okay

The Pitt accurately portrays the mental health struggles faced by medical professionals, highlighting the alarming rates of physician suicide.
Medicine
fromPsychology Today
5 days ago

How to Create a Psychiatric Advance Directive

A psychiatric advance directive is a legal document outlining mental health treatment preferences during a crisis when communication is impaired.
Parenting
fromPsychology Today
1 week ago

A Classmate Has Died-How Do I Talk About It With My Child?

Supporting a child through grief requires parents to process their own emotions first for effective communication and comfort.
Public health
fromwww.bbc.com
1 week ago

A cold could kill my daughter - hospital visits feel like a death sentence

Cancer patients face life-threatening risks in crowded A&E waiting areas, prompting calls for separate spaces to protect their health.
Arts
fromwww.npr.org
2 weeks ago

How a stranger's kind words stayed with a father and daughter

John's daughter Keane suffers from PANDAS, a neurological condition, and the family's journey highlights the importance of support and recognition from others.
#gender-affirming-care
Healthcare
fromAdvocate.com
2 weeks ago

Minnesota's largest pediatric system restarts gender-affirming care for trans minors

Minnesota's largest pediatric health system has resumed gender-affirming care for minors after a federal judge blocked a Trump administration directive.
Healthcare
fromAdvocate.com
3 weeks ago

Doctors' group says American Medical Association didn't retreat on gender-affirming care for minors

The American Medical Association maintains its support for gender-affirming care despite claims of a policy shift.
fromLGBTQ Nation
2 months ago
US politics

Wisconsin pediatric hospitals end gender-affirming care, risking health of trans youth. - LGBTQ Nation

Healthcare
fromAdvocate.com
2 weeks ago

Minnesota's largest pediatric system restarts gender-affirming care for trans minors

Minnesota's largest pediatric health system has resumed gender-affirming care for minors after a federal judge blocked a Trump administration directive.
Healthcare
fromAdvocate.com
3 weeks ago

Doctors' group says American Medical Association didn't retreat on gender-affirming care for minors

The American Medical Association maintains its support for gender-affirming care despite claims of a policy shift.
fromLGBTQ Nation
2 months ago
US politics

Wisconsin pediatric hospitals end gender-affirming care, risking health of trans youth. - LGBTQ Nation

#sanfilippo-syndrome
SF parents
fromwww.bbc.com
3 weeks ago

My daughter has childhood dementia and may not live past 16

Sophia Scott's family faces the challenges of her rare, incurable condition, Sanfilippo syndrome, which causes childhood dementia and impacts their lives significantly.
SF parents
fromwww.bbc.com
3 weeks ago

My daughter has childhood dementia and may not live past 16

Sophia Scott's family faces the challenges of her rare, incurable condition, Sanfilippo syndrome, which causes childhood dementia and impacts their lives significantly.
Health
fromPsychology Today
3 weeks ago

The Things Physician Mothers Don't Talk About

Strength is often misrepresented as silence, leading to feelings of inadequacy in motherhood and personal identity.
Cancer
fromwww.nytimes.com
3 weeks ago

What Is It Like to Get Cancer When You're Young?

Cancer is increasingly affecting individuals under 50, impacting their lives and relationships significantly.
Public health
fromNew York Post
2 weeks ago

New Yorkers issued stark warning about opening 'Pandora's box' of doctor-assisted suicide: 'Like a holocaust'

New Yorkers should prepare elderly relatives for potential risks associated with the legalization of Physician Assisted Suicide.
fromwww.aljazeera.com
3 weeks ago

Children's hospital in Tehran keeps hopes and smiles alive during war

Resident doctors and interns at the Children's Medical Center have been pooling their own money with some donations to organise activities for the children suffering from underlying health conditions.
NYC parents
Medicine
fromPsychology Today
1 week ago

How Cognitive and Social Forces Shape Medical Decisions

Medical decisions are influenced by how options are framed, presented, and the dynamics of the situation.
#medical-assistance-in-dying
Canada news
fromThe Walrus
1 month ago

The Doctor Behind One of Canada's First MAID Deaths Speaks Out | The Walrus

In 2024, Canada recorded 16,499 medically assisted deaths, with Quebec having the highest rate globally, constituting 36.3% of such deaths in the country.
Canada news
fromThe Walrus
1 month ago

The Doctor Behind One of Canada's First MAID Deaths Speaks Out | The Walrus

In 2024, Canada recorded 16,499 medically assisted deaths, with Quebec having the highest rate globally, constituting 36.3% of such deaths in the country.
Fundraising
fromwww.businessinsider.com
1 month ago

I started a cancer nonprofit at 14 after losing my grandfather and teacher. Now it has 40,000 youth volunteers.

Olivia Zhang founded Cancer Kids First to support children with cancer after losing loved ones to the disease.
Parenting
fromBustle
1 month ago

Are Your Parents Guilty Of The Boomer Hospital Reveal?

Many older adults avoid sharing health issues with family, often prioritizing their independence over communication.
SF parents
fromEsquire
1 month ago

He Treated Gravely Ill Children with Cannabis. Then One of Them Died.

Mark Pedersen experienced profound grief after the death of Jack, a disabled teen he cared for and considered family.
Psychology
fromSilicon Canals
1 month ago

I asked 11 hospice nurses what dying people talk about in their final weeks and not one mentioned career achievements. Every single answer pointed to the same category of regret, and it had nothing to do with what they did or didn't accomplish. - Silicon Canals

Dying patients consistently regret unrepaired relationships and missed connections rather than professional achievements, revealing a fundamental misalignment between what modern life optimizes for and what ultimately matters.
Medicine
fromwww.businessinsider.com
3 weeks ago

I vibe coded an AI tool to help my mom fight stage 4 cancer. It helped us catch errors in her treatment and let her die with dignity.

Pratik Desai developed a tool to assist his mother in navigating Stage 4 duodenal adenocarcinoma using advanced coding and AI technology.
Public health
fromwww.npr.org
4 weeks ago

'What if I die first?' Making a plan is key for family caregivers. Here's how

Family caregivers for adults with disabilities worry most about the future and lack of planning for care after their own death.
Cancer
fromwww.theguardian.com
1 month ago

I have stage four cancer there will be no cure, but death isn't necessarily imminent: this is how it feels to live in the long middle

Stage four lung cancer transforms breath into a finite currency, dictating daily life and relationships amidst medical advancements that extend survival.
Relationships
fromSlate Magazine
1 month ago

My Child Just Had a Terrifying Medical Crisis. I'm Shocked by My Best Friend's Response.

Friendship requires mutual support, and absence during crises can lead to feelings of hurt and disappointment.
fromSlate Magazine
4 weeks ago

The Baby's Heart Stopped. One Phrase Has Stuck With Me for Years Since.

There is a piece of advice given to doctors in moments like this: Check your own pulse. Each person in the room has a role, and we perform it best with steady hands and measured voices.
Medicine
fromwww.bbc.com
3 weeks ago

New hope for children with severe epilepsy

The condition, called recessive RNU2-2-related neurodevelopmental disorder, is associated with seizures and severe developmental delay in children less than a year-old, in areas such as speech and walking.
Medicine
Cancer
fromwww.bbc.com
1 month ago

'How my girl, 9, beat kidney failure and cancer'

A nine-year-old girl survived kidney failure, received a transplant, overcame bowel cancer, and was declared cancer-free, defying medical expectations at each stage.
LGBT
fromLGBTQ Nation
2 months ago

A second major medical org has walked back support for gender-affirming care for youth - LGBTQ Nation

The American Medical Association now recommends generally deferring surgical gender-affirming interventions for minors while continuing support for puberty blockers and hormone therapy.
US news
fromThe Washington Post
1 month ago

Child, 4, arrived alone for heart surgery. His doctor became his mom.

A pediatric cardiac anesthesiologist became a foster parent to a young patient with congenital heart disease after discovering he was alone and neglected in the medical system.
Law
fromLos Angeles Times
23 years ago

When to Raise the Issue of Death

California sellers must disclose deaths occurring on property within three years; deaths older than three years generally don't require disclosure, though recent deaths remain a legal gray area.
fromScary Mommy
1 month ago

When Kids Get Sick, Working Moms Do The Impossible Math

A Genexa survey of 1,000 U.S. moms found that 70% use their own sick days to stay home when their child is ill, and 58% work from home while caregiving. In other words, many of us are doing the same impossible math: caring for sick kids while trying to keep our work lives moving.
Parenting
Mental health
fromPsychology Today
2 months ago

Beyond Remission: Supporting Oncology Survivorship

Cancer survivorship transforms family relationships into a new, ongoing relational terrain requiring role renegotiation, communication adjustments, and systemic therapeutic support.
fromwww.bbc.com
2 months ago

'Hospital's neglect in my son's death has ripped our hearts out'

Peter Dervin had spent all day by his son's side in Broomfield Hospital before he decided to get dinner. He pleaded with staff at the Essex facility not to leave his eldest child, Greg, alone in his absence. "They almost laughed at me and said, 'This is what we do. We're nurses and we look after patients'," Dervin recalls. Greg had been given lorazepam, an anxiety drug flagged by clinicians as leaving him prone to becoming unsteady and agitated.
UK news
fromwww.bbc.com
2 months ago

No-one knows what to expect when you're dying - but hospices helped me

I think everybody worries when they come to the last stages, no one knows what to expect, but these people are wonderful at relaxing you and they help you an awful lot.
Public health
Medicine
fromBuzzFeed
1 month ago

Hospital Workers Are Revealing The Heartbreaking Regrets Patients Had On Their Deathbeds, And Wow

Healthcare workers witness profound deathbed regrets centered on lost relationships, unresolved conflicts, and time wasted on non-essential pursuits rather than loved ones.
Relationships
fromSlate Magazine
1 month ago

My Dying Husband Has One Final Wish. I Don't Think I Can Give Him That.

An 80-year-old couple faces conflicting priorities: one spouse wants expensive international travel for end-of-life experiences while the other prioritizes financial reserves for anticipated long-term care costs.
fromPsychology Today
2 months ago

To Medicate or Not To Medicate Your Child or Teenager

Every day, many thousands of parents across the U.S. face the difficult question of whether to place their child or teenager on a psychotropic medication. Receiving a diagnosis of a mental disorder can be scary and confusing, for the youth as well as their parents/caretakers. What is ADHD? Depression? Anxiety? OCD? Bipolar? What are the available treatments? Do we have to use medications to treat the symptoms?
Mental health
fromwww.bbc.com
1 month ago

Parents of gravely ill child refused respite care

It is really, really hard. He said the family had 'cried and begged for help' in meetings at home. 'Does our family unit have to break down? Does it have to get to a point where we no longer sustain this and then they'll step in and give you support? Because right now that's where we're at. We don't have any alternatives. If grandparents were an option, we'd already be doing it.'
Public health
Parenting
fromBusiness Insider
1 month ago

I was the primary caregiver for my mother until she died. The responsibilities didn't end with her death.

Caregiving extends beyond a person's lifetime through managing their memory, finances, and legacy with the same dignity and respect shown during their life.
Mental health
fromPsychology Today
2 months ago

The Health Care Empathy Dilemma

Different empathy types affect caregivers differently: compassion empathy protects against burnout while contagion empathy increases burnout risk by merging others' emotions.
Public health
fromwww.bbc.com
2 months ago

Parents to open 'virtual hospice' after unit shuts

Families of seriously ill children in east London are establishing East London Hospice to provide home-based 'virtual hospice' care after Richard House's closure.
Medicine
fromSlate Magazine
1 month ago

At 42, With Three Young Kids, I Got a Diagnosis That Would Have Me Dead in a Year. That Was Somehow Just the Beginning.

A 42-year-old man was diagnosed with cholangiocarcinoma, a rare and aggressive bile duct cancer with a 10% five-year survival rate, after initially presenting with jaundice symptoms.
Cancer
fromwww.theguardian.com
1 month ago

This is how we do it: His cancer diagnosis hit the reset button we've built up quite the collection of toys'

Prostate cancer surgery forced open communication about intimacy, transforming a long marriage's sexual relationship into more frequent, satisfying encounters through honest dialogue and planning.
Cancer
fromPsychology Today
1 month ago

How to Help Friends Dealing With Cancer

Show up with active listening, avoid unsolicited advice, and never dismiss cancer patients' experiences with false reassurance.
#healthcare-architecture
Cancer
fromwww.theguardian.com
1 month ago

A space of their own': how cancer centres designed by top architects bring hope to patients

Maggie's Centres provide compassionate, architecturally designed spaces within hospitals where cancer patients can maintain joy and connection to life during treatment.
Cancer
fromwww.theguardian.com
1 month ago

A space of their own': how cancer centres designed by top architects bring hope to patients

Maggie's Centres provide compassionate, architecturally designed spaces within hospitals where cancer patients can maintain joy and connection to life during treatment.
#childhood-cancer
fromIndependent
2 months ago
Medicine

Childhood cancer: 'They took us to a side room...?I never want to be brought in to a side room in a hospital again'

fromIndependent
2 months ago
Medicine

Childhood cancer: 'They took us to a side room...?I never want to be brought in to a side room in a hospital again'

fromMedscape
2 months ago

Is Assisted Death Always Peaceful? We Simply Don't Know

For decades, the gold standard for the coma-induction phase of euthanasia was thiopental. It was swift, reliable, and highly concentrated and rapidly induced a deep coma. In 2011, however, the European Union banned the export of drugs used for capital punishment, including thiopental. In the wake of the ban, manufacturers withdrew or tightly controlled supplies to avoid association with executions, making the drug increasingly difficult to obtain. "Thiopental is very difficult to get now," Horikx said.
Medicine
fromwww.bbc.com
2 months ago

'Our daughter's cancer symptoms were dismissed because she was a child'

Isla first went to the GP in July 2022 with a lump in her breast, but she was told it was likely to be benign and caused by hormonal changes. "She was told it was hormonal - a fibroadenoma - and she would grow out of it," Isla's father Mark said. Two years later, Isla became ill and was taken to hospital, where doctors suspected she had cancer and made an urgent referral for biopsies.
Public health
Medicine
fromPsychology Today
2 months ago

Dying With Dignity

Dying with dignity enables individuals to control when, how, and where they die, prioritizing autonomy, informed consent, and minimizing suffering.
Public health
fromPsychology Today
2 months ago

Where Equity Begins: A Book on the Pediatrician's Exam Table

Shared reading from infancy builds brain architecture, strengthens bonds, and advances equity by improving language, school readiness, and long-term life outcomes.
Public health
fromwww.bbc.com
1 month ago

More work, no funding - paediatrics under pressure

Pediatric retrieval teams across the UK face severe capacity constraints while being asked to transport hundreds more children without additional resources or funding.
Medicine
fromHarvard Gazette
2 months ago

It's time to get more comfortable with talking about dying - Harvard Gazette

Most Americans want to talk about death but feel uncomfortable; growing post‑pandemic conversations and palliative resources can improve end‑of‑life communication.
fromScary Mommy
2 months ago

Study Finds Parents Are Right 90% Of The Time When They Suspect Serious Illness

You know that parental instinct when something just isn't quite right with your child? You text your mom friends and gut check with your partner, but you don't think you're being anxious - something might really be wrong. Well, odds are your instinct could be spot-on: A new study published in the JAMA Network found that parents were right 9 times out of 10 when they suspected their child was seriously ill or injured.
Medicine
Medicine
fromwww.bbc.com
1 month ago

I spent 13 years in pain before doctors finally worked out why

Endometriosis diagnosis is significantly delayed in the UK, with patients waiting an average of nine years and four months, often dismissed as other conditions despite severe symptoms.
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