"He was witty, acerbic, full of humor, and he always had a great story. So, as speaking became harder for him, I watched and witnessed some of his joy fade, and it was really hard and very heartbreaking."
"The disease affects nerves in the brain and spinal cord, robbing a person of their ability to walk, breathe and often speak."
Actor Eric Dane, known for Grey's Anatomy, died at 53 from ALS, a disease affecting nerves in the brain and spinal cord that progressively robs people of mobility, breathing, and speech. His widow, Rebecca Gayheart Dane, witnessed the emotional toll as his ability to speak deteriorated, causing him to lose joy and humor that defined his personality. She now collaborates with ElevenLabs, an artificial intelligence company specializing in synthetic voice software, to help people with permanent voice loss replicate their voices. The program successfully recreated Eric Dane's voice, allowing his legacy to be preserved through technology.
#als-disease #synthetic-voice-technology #artificial-intelligence #voice-preservation #caregiver-experience
Read at www.npr.org
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