"I'm in my 60s and have a crippling disease that kept me housebound for nearly five years. My daughter moved back home during that time, after her sister took her life and left behind a young son, whom we have been raising together. A new medication for this disease was recently approved. I've been taking it for two years, and it has led to incredibly impressive improvements. I have a new lease on life!"
"The manufacturers of this medication invited me to be a patient ambassador for them this year. I receive a good stipend for traveling once every other month or so to talk with physicians, pharmacists and other patients struggling with this condition. The trips are very short (one to two days), and my physical needs and limitations are respected and accommodated."
A woman in her 60s was housebound for nearly five years due to a crippling disease. A newly approved medication taken for two years produced dramatic improvement and restored mobility. The medication's manufacturer invited her to serve as a patient ambassador, with short, well-accommodated bimonthly trips and a stipend. Her adult daughter reacted angrily, accusing her of promoting pharmaceutical interests, citing recovery time and caregiving burdens, and refusing to support or participate. The patient suspects deeper fears about eventual loss and asks how to discuss mortality with a child who avoids the topic. The patient wishes to continue advocacy while seeking family acceptance and support.
Read at www.mercurynews.com
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