The Kelly family's experience of spinal surgery services has at times been devastating, with long waits for procedures and last-minute cancellations.
In early 2019, Lucy's rods could 'grow' no more, and she needed surgery to replace them, causing her great discomfort that required pain medication.
Nobody realizes what has to go on at home in order to get ready for this. There are other children, and so much organizing to get to that point.
The operation transformed everything, marking a significant turning point in Lucy's journey with her condition.
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